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Relationship of consent to store blood with consent for other aspects of the study*. Among 1,004 urban Indigenous Australian research participants in 2003–2005. |
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| Proportion who gave consent for study staff to: |
Agreed to long-term storage (n = 550) % |
Did not agreed to long-term storage (n = 454) % |
Total (n = 1,004) % |
|
|
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| Contact family and friends to help find participant |
96.6 |
85.5 |
91.5 |
| Contact participant to discuss continuation of the study beyond five years |
93.1 |
85.9 |
89.8 |
| Access information from health care provider |
92.9 |
84.6 |
89.1 |
| Access information from local Registrar of Births, Deaths and Marriages and the National Death Index |
94.6 |
81.5 |
88.6 |
| Access information from pathology services |
92.4 |
82.2 |
87.8 |
| Access information from local Department of Health and Community Services |
92.2 |
80.4 |
86.8 |
| Contact participant to discuss other related studies |
88.2 |
73.6 |
81.6 |
| Access information from the sole local private hospital |
85.3 |
69.6 |
78.2 |
| Long-term storage of excess blood samples |
--- |
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54.8 |
|
* p < 0.001 for all comparisons between those who did and did not consent. | |||
Cunningham and Dunbar Epidemiologic Perspectives & Innovations 2007 4:7 doi:10.1186/1742-5573-4-7 |
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